sunset

Background

This section concerns the progress of the dementia from my mother's 84th year, from care in her own home to her stay in hospital and finally to a Residential Care Home and her last days. One thing that subsequently came out of the CHC appeals process and the documentation package which I received was that during the period prior to hospital admission, her psychiatrist had been regularly reporting to her doctor and Social Services but not to me (the misplaced confidentiality thing). Consequently, as I had no knowledge of this communication between 'professionals', the situation was more disjointed that it neede to have been as I was playing with half a glass, a good way to create confusion. We did in fact have reasonably regular reviews at my mother's residential care facility but these were so full of buzz words that we did not really appreciate the real status quo. Having read the IRP package, it did throw a lot more light on just how the Alzheimer's condition was impacting my mother. Documentation on this web site therefore consists of my own data as well as data from the other agencies involved in my mother's care to make sense of it all. Although the official diagnosis was Alzheimer's, my mother did show some evidence of dementia with Lewy bodies.


Summary
Dementia introduces an unpleasant cocktail of taboos. Firstly, it's the beginning of the end, a long slide towards death - and we don't talk about death; secondly, it's a disease within the brain that interferes with people's perception of reality - and we don't talk about mental deficiencies; thirdly, it's a process that scrapes away layers of skills, memories and awareness, leading someone we love into delusion and confusion - and that's something we don't even want to think about. In a nutshell that was the reality and this page summarises the events how my mother had to deal with it. When my mother was admitted to her Residential care Home, she was not in a very good state after her stay in hospital. However the Home began to take care of the 'person' and she improved thanks to the patience and understanding shown to her by the care staff. Not an easy job being a Carer but the carers at my mother's home were excellent. For 3½ years in the Home she was fairly stable, she did require quite a lot of attention thanks to the state the NHS left her in. However, she was very cheerful, she took part in all the activities and was always appreciative of the attention she received. However in 2002, due to Local Authority cutbacks and penny pinching, she was deemed too expensive on carer's time. To the carers she was not a problem but to the bureaucrats she was, the official position being that she needed 'nursing care'. I was told to move her out, I refused until they gave me a definition of 'nursing care' and how that differed from the care she was receiving in the Home. They never gave me a definition but they branded me awkward and difficult. The bureaucrats just wanted her out apparently , I didn't have the full picture until now, they never attempted to get me on side, never answered my questions. I can only deal with facts. Putting a frail old lady out, who did not have long to live, would have certainly caused her severe anguish. It was just officialdom moving a person along in the system irrespective. Our original assigned Social Worker, a really hard-working dedicated lady, was so disillusioned with the system that she left. In secret meetings the officialdom got to the point of sectioning my mother under the Mental Health Act but backed off as her health deteriorated as a move then would have been a death sentence. As it was, a doctor and district nurse decided to put her on the death pathway and inject morphine without any discussion with me. I think they acted illegally to bring about my mother's death.
The supporting documents for this section can be found as follows:-
a) Click HERE for the full detail of my mother's Residential Care.
a) Click HERE for Visitor comments
b) Click HERE for The initial assessment from he Care Home Manager
c) Click HERE for the Daily Care Record
d) Click HERE for the initial sectioning memo
e) Click HERE for the second memo
f) Click HERE for the End of Life Summary